Mapping the lived experiences of intersex/variations of sex characteristics in Ireland: contextualising lay and professional knowledge to enable development of appropriate law and policy
Ní Mhuirthile, TanyaORCID: 0000-0001-8660-0012, Feeney, MariaORCID: 0000-0003-3305-637X, Duffy, MelORCID: 0000-0001-8091-7406 and Staines, AnthonyORCID: 0000-0001-9161-1357
(2022)
Mapping the lived experiences of intersex/variations of sex characteristics in Ireland: contextualising lay and professional knowledge to enable development of appropriate law and policy.
Project Report.
Dublin City University. ISBN 978-1-911669-38-8
Intersex is an umbrella term for people born with atypical variations of sex characteristics (I/VSC) estimated to be between 0.5% and 1.7% the population according to the UN. This report is novel as it uncovers the lived experiences of those with I/VSC, their partners and the health care professionals who care for them in Ireland. It will sets this analysis in the context of the legal response to I/VSC in order to determine how Ireland meets in obligations towards those with I/VSC. This report brings together an understanding of I/VSC from the perspectives of sociology, medical and legal disciplines which is unique in the study of I/VSC. It paints a comprehensive picture of the current state of I/VSC in Ireland.
Metadata
Item Type:
Monograph (Project Report)
Refereed:
No
Uncontrolled Keywords:
variations of sex characteristics; disorder of sex development; atypical sex characteristics; diverse sex development; differences of sex development; body difference, lived experiences; hermeneutic phenomenology; human rights; trauma; harm; childhood trauma; stigma; shame; torture; gender based violence; medical records; privacy; discrimination; differences; policy, law reform; 5-Alpha Reductase Deficiency (ARD); Ambiguous Genitalia; Androgen Insensitivity Syndrome (AIS); Complete Androgen Insensitivity Syndrome (CAIS); Partial Androgen Insensitivity Syndrome (PAIS); Congenital Adrenal Hyperplasia (CAH), Gonadal Dysgenesis (partial & complete); Hypospadias; Jacobs/XYY Syndrome; Kallman Syndrome, Klinefelter syndrome (KS) also known as XXY/47; Mayer-Rokitansky-Küster-Hauser (MRKH), Micropenis; Mosaicism involving “sex” chromosomes; Ovo-testes; Polycystic Ovarian Syndrome; Progestin Induced Virilisation; Swyer Syndrome; Turner’s Syndrome (one X chromosome); XY-Turner’s Syndrome