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Living with lymphoedema in Ireland: a mixed methods exploration of patient and service provider perspectives

Murray, Maeve (2010) Living with lymphoedema in Ireland: a mixed methods exploration of patient and service provider perspectives. Master of Science thesis, Dublin City University.

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Abstract

Lymphoedema is a chronic condition characterised by swelling. It results from impairment of the lymphatic system following cancer treatment, congenital malformation or other medical conditions. This study is the first conducted in Ireland to investigate lymphoedema service provision from practitioner and patient perspectives, in addition to exploring the impact of lymphoedema on patients’ quality of life. Phase one involved a postal survey of 108 practitioners. Phase two involved five focus groups conducted throughout the country with a total of 33 patients. Phase three involved administering a postal survey and World Health Organisation (WHO) quality of life measure to 735 patients. Following integration of the mixed methods data, two super-ordinate themes emerged: lymphoedema - an unacknowledged condition; and the legacy of lymphoedema’s association with cancer. The first theme related to poor awareness of lymphoedema resulting in under-resourced, insufficient service provision, and feelings of isolation for patients. The second theme related to inequitable service provision for patients with non-cancer-related lymphoedema; and lymphoedema as a constant reminder of patients’ cancer treatment. Recommendations for lymphoedema service provision and patient support were made in light of these themes.

Item Type:Thesis (Master of Science)
Date of Award:March 2010
Refereed:No
Supervisor(s):Gallagher, Pamela
Subjects:Medical Sciences > Psychology
Medical Sciences > Health
DCU Faculties and Centres:DCU Faculties and Schools > Faculty of Science and Health > School of Nursing and Human Sciences
Use License:This item is licensed under a Creative Commons Attribution-NonCommercial-No Derivative Works 3.0 License. View License
ID Code:15087
Deposited On:31 Mar 2010 11:20 by Pamela Gallagher. Last Modified 31 Mar 2010 11:20

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