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A qualitative investigation into family carers’ experiences of living with/caring for a person with young-onset dementia.

Blake, Cathal and Hopper, Louise orcid logoORCID: 0000-0002-9382-5241 (2021) A qualitative investigation into family carers’ experiences of living with/caring for a person with young-onset dementia. International Journal of Care and Caring., 5 . pp. 1-19. ISSN 2397-8821

Abstract
Ageing is a significant risk factor for developing dementia; however, some people develop symptoms before the age of 65. Although less common, it is referred to as young-onset dementia. Estimating prevalence rates in Ireland is difficult, as there has been little study around what it is like to live with/care for this cohort; consequently, it is poorly understood. Nine primary carers were interviewed using semi-structured one-to-one interviews. Interview data were analysed with inductive thematic analysis. Themes included sense of loss, diagnostic issues, appropriateness of services, stigma and carer strain, illustrating the complex nature of caring for someone with young-onset dementia.
Metadata
Item Type:Article (Published)
Refereed:Yes
Uncontrolled Keywords:young-onset dementia; carer strain; stigma; diagnostic process; sense of loss
Subjects:Medical Sciences > Psychology
DCU Faculties and Centres:DCU Faculties and Schools > Faculty of Science and Health > School of Psychology
Publisher:Policy Press
Official URL:https://dx.doi.org/10.1332/239788221X1616602209703...
Copyright Information:© 2021 Bristol University Press
Use License:This item is licensed under a Creative Commons Attribution-NonCommercial-Share Alike 3.0 License. View License
ID Code:25768
Deposited On:05 Jul 2021 11:54 by Vidatum Academic . Last Modified 25 Mar 2022 04:30
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