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A validation study of the ICECAP‑O in informal carers of people with dementia from eight European Countries

Perry‑Duxbury, Meg ORCID: 0000-0001-5293-2457, van Exel, Job, Brouwer, Werner ORCID: 0000-0002-0476-8397, Sköldunger, Anders ORCID: 0000-0001-8439-2248, Gonçalves-Pereira, Manuel ORCID: 0000-0003-1419-1306, Irving, Kate ORCID: 0000-0002-9255-4574, Meyer, Gabriele ORCID: 0000-0002-3188-2902, Selbaek, Geir ORCID: 0000-0001-6511-8219, Woods, Bob ORCID: 0000-0002-6781-651X, Zanetti, Orazio ORCID: 0000-0002-5408-0048, Verhey, Frans ORCID: 0000-0002-8307-8406, Wimo, Anders ORCID: 0000-0003-0963-5750 and Handels, Ron L.H. ORCID: 0000-0002-8663-0630 (2019) A validation study of the ICECAP‑O in informal carers of people with dementia from eight European Countries. Quality of Life Research, 29 . pp. 237-251. ISSN 0962-9343

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Abstract

Purpose The pressure on healthcare budgets remains high, partially due to the ageing population. Economic evaluation can be a helpful tool to inform resource allocation in publicly financed systems. Such evaluations frequently use health-related outcome measures. However, in areas such as care of older people, improving health outcomes is not necessarily the main focus of care interventions and broader outcome measures, including outcomes for those providing informal care, may be preferred when evaluating such interventions. This paper validates a recently introduced well-being measure, the ICECAPO, in a population of informal carers for people with dementia from eight European countries. Methods Convergent and discriminant validity tests were performed to validate the ICECAP-O using data obtained in a sample of 451 respondents from Germany, Ireland, Italy, the Netherlands, Norway, Portugal, Sweden and the UK. These respondents completed a number of standardized questionnaires within the framework of the Actifcare project. Results The ICECAP-O performed well among informal carers, in terms of both convergent and discriminant validity. In the multivariate analysis, it was found to be significantly associated with the age of the person with dementia, EQ-5D-5L health problem index of the person with dementia, carer–patient relationship, care recipient CDR, carer LSNS Score, the PAI score, and Perseverance Time. Conclusion The ICECAP-O appears to be a valid measure of well-being in informal carers for people with dementia. The ICECAP-O may therefore be useful as an outcome measure in economic evaluations of interventions aimed at such informal carers, when these aim to improve well-being beyond health.

Item Type:Article (Published)
Refereed:Yes
Uncontrolled Keywords:Construct validity; ICECAP-O; Informal care; Dementia; Well-being
Subjects:UNSPECIFIED
DCU Faculties and Centres:DCU Faculties and Schools > Faculty of Science and Health > School of Nursing and Human Sciences
Publisher:Springer
Official URL:https://dx.doi.org/10.1007/s11136-019-02317-3
Copyright Information:© 2019 The Authors. Open Access
Funders:EU Joint Programme—Neurodegenerative Disease Research (JPND) project
ID Code:27587
Deposited On:18 Aug 2022 17:17 by Thomas Murtagh . Last Modified 24 Feb 2023 15:33

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