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The feasibility of a comprehensive resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study

Casey, Dympna orcid logoORCID: 0000-0001-5341-597X, Gallagher, Niamh, Devane, Declan orcid logoORCID: 0000-0002-9393-7075, Bob Woods, Bob orcid logoORCID: 0000-0002-6781-651X, Murphy, Kathy, Smyth, Siobhán orcid logoORCID: 0000-0002-5481-3336, Newell, John, Murphy, Andrew W., Clarke, Charlotte, Foley, Tony orcid logoORCID: 0000-0003-3205-3871, Timmons, Fergus orcid logoORCID: 0000-0002-2691-7752 and Irving, Kate orcid logoORCID: 0000-0002-9255-4574 (2020) The feasibility of a comprehensive resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study. Pilot and Feasibility Studies, 6 . ISSN 2055-5784

Abstract
Background: A dementia diagnosis can prevent people from participating in society, leading to a further decline in cognitive, social and physical health. However, it may be possible for people with dementia to continue to live meaningful lives and continue to participate actively in society if a supportive psychosocial environment exists. Resilience theory, which focuses on strengthening personal attributes and external assets in the face of serious challenges, may provide a scaffold on which an inclusive multifaceted psychosocial supportive environment can be built. This protocol paper describes a study to determine the feasibility of conducting a multifaceted complex resilience building psychosocial intervention for people with dementia and their caregivers living in the community. Methods: This is a non-randomised feasibility study. Ten participants with dementia and their primary caregivers living in the community will be recruited and receive the CREST intervention. The intervention provides (a) a 7-week cognitive stimulation programme followed by an 8-week physical exercise programme for people with dementia and (b) a 6-week educational programme for caregivers. Members of the wider community will be invited to a dementia awareness programme and GP practices to a dementia training workshop. Trained professionals will deliver all intervention components. Outcomes will assess the feasibility and acceptability of all study processes. The feasibility and acceptability of a range of outcomes to be collected in a future definitive trial, including economic measurements, will also be explored. Finally, social marketing will be used to map a route toward stigma change in dementia for use in a subsequent trial. Quantitative feasibility outcome assessments will be completed at baseline and after completion of the 15-week intervention while qualitative data will be collected at recruitment, baseline, during and post-intervention delivery Conclusion: This feasibility study will provide evidence regarding the feasibility and acceptability of a comprehensive multifaceted psychosocial intervention programme for people with dementia and their caregivers (CREST). The results will be used to inform the development and implementation of a subsequent RCT, should the findings support feasibility. Trial registration: ISRCTN25294519 Retrospectively registered 07.10.2019
Metadata
Item Type:Article (Published)
Refereed:Yes
Additional Information:Article number: 177
Uncontrolled Keywords:People with dementia; Caregivers, Resilience; Psychosocial interventions; Non-randomised feasibility study
Subjects:UNSPECIFIED
DCU Faculties and Centres:DCU Faculties and Schools > Faculty of Science and Health > School of Nursing and Human Sciences
Publisher:BMC (Springer)
Official URL:https://dx.doi.org/10.1186/s40814-020-00701-2
Copyright Information:© 2020The Authors. Open Access (CC-BY 4.0)
ID Code:27589
Deposited On:19 Aug 2022 11:16 by Thomas Murtagh . Last Modified 19 Aug 2022 11:16
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