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Innovations in diversity and equity in social health research in dementia - Recommendations from the JPND INTEREST Working Group March, 2025

Hopper, Louise orcid logoORCID: 0000-0002-9382-5241 (2025) Innovations in diversity and equity in social health research in dementia - Recommendations from the JPND INTEREST Working Group March, 2025. Project Report. DCU.

Abstract
EXECUTIVE SUMMARY Purpose The societal challenge of dementia is the expected steep increase in the number of people with dementia in the coming years, coupled with a decrease in the workforce of professional caregivers. Despite progress in care and support, many health and social care needs remain unmet due to inequity, lack of individualized treatment, and a gap between research and practice implementation. The INTEREST Working Group aims to address these issues using a multi-level approach and an overarching framework of social health and intersectionality. Methodology The report employs a comprehensive literature review, public person involvement (PPI), and reviews of intervention guidelines, assistive technology, and policy. The methodology integrates findings from various sub-groups focusing on inequity, technology, and policy. Findings 1. Inequity in Healthcare: Ethnic minorities and socioeconomically disadvantaged populations are underrepresented in dementia research and care, leading to unmet needs. 2. Limited Tailoring of Interventions: Innovations are often generic and not tailored to individual needs, requiring more culturally respectful and personalized approaches. 3. Implementation Gap: Innovations in support and care are not embedded in routine care, necessitating better connections between research, education, and practice. XXX Recommendations 1. Strategic Policy and Best-Practice Guidelines: Develop policies and guidelines to address identified gaps. 2. Innovative Research Frameworks: Create frameworks to support transdisciplinary research for diverse groups. 3. Increased Research Capacity: Build capacity in research, including early career researchers and public participation. Conclusion and Call to Action The INTEREST Working Group proposes mechanisms for addressing gaps in dementia care through strategic policy, best-practice guidelines, innovative research frameworks, and increased research capacity. Future steps include implementing these recommendations to achieve equitable dementia research, care, and treatment. Policymakers, researchers, healthcare providers, and community organisations must collaborate to implement these recommendations. By doing so, we can create a more supportive and inclusive environment for people living with dementia and their carers, ultimately improving their quality of life and well-being.
Metadata
Item Type:Monograph (Project Report)
Refereed:No
Uncontrolled Keywords:Dementia; Alzheimer's Disease; Social Health; Intersectionality; Inequity Policy
Subjects:Medical Sciences > Health
Medical Sciences > Psychology
DCU Faculties and Centres:DCU Faculties and Schools > Faculty of Science and Health
DCU Faculties and Schools > Faculty of Science and Health > School of Psychology
Publisher:DCU
Copyright Information:Authors
Funders:Health Research Board, Joint Programme for Neurodegenerative Research
ID Code:31070
Deposited On:19 May 2025 11:05 by Louise Hopper . Last Modified 19 May 2025 11:05
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