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A phenomenological exploration of the lived experience of adults experiencing pathological demand avoidance.

Kenny, Neil orcid logoORCID: 0000-0002-2340-6586 and Doyle, Alison orcid logoORCID: 0000-0002-2121-0109 (2024) A phenomenological exploration of the lived experience of adults experiencing pathological demand avoidance. Neurodiversity, 2 . pp. 1-13. ISSN 2754-6330

This study explores the lived experiences of adults with Pathological Demand Avoidance (PDA) in Ireland. There is a paucity of research exploring the experience of those living with PDA in Ireland which impacts levels of awareness and understanding of anxiety-based demand avoidance and its intersection with autism. As lifelong conditions, this has implications for adults who can struggle to access services or appropriate supports or can be isolated in the transition from Child and Adolescent services. This paper extracts data from a national study, Mapping Experiences of Pathological Demand Avoidance in Ireland, and examines the lived experience and personal histories of adults with a diagnosis of / self-identifying with PDA and autism, consisting of statements extracted from open-ended survey responses, and in-depth interviews. A deductive approach to the analysis of their testimonies discovered four superordinate themes: 1) Bidirectional social challenges, 2) Life experiences, 3) Trust and safety, and 4) Accepting our truth. Subordinate leitmotifs describe: Pervasive anxiety, Challenges negotiating life demands, and Flexibility in education settings. This paper reveals the interplay between PDA, autism, and mental health for these participants combined, leading to significant challenges in daily life. To support better life quality and flourishing, participants advised greater autonomy and flexibility of support across all aspects of life and more awareness of PDA across society
Item Type:Article (Published)
Refereed:Yes
Uncontrolled Keywords:PDA, autism, education, mental health, adults
Subjects:Social Sciences > Education
Social Sciences > Teaching
DCU Faculties and Centres:DCU Faculties and Schools > Institute of Education
DCU Faculties and Schools > Institute of Education > School of Inclusive & Special Education
Publisher:Sage Publications Ltd.
Official URL:https://journals.sagepub.com/doi/epdf/10.1177/2754...
Copyright Information:Authors
ID Code:30845
Deposited On:31 Mar 2025 13:15 by Neil Kenny . Last Modified 31 Mar 2025 13:15

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