The Irish Research Council has funded this research under the Government of Ireland ‘New Foundations’ Scheme. Responsibility for the research (including any errors or omissions) remains with the Researchers. The views and opinions contained in this report are those of the authors and do not necessarily reflect the views or opinions of the funding body. Founded in 2014, PRISM DLR (Parents, Resources, Information and Support, Meeting needs) addresses significant gaps in supports for families within the Dun Laoghaire Rathdown catchment area, a Dublin region with a population of circa 220,000 inhabitants. In April 2017, PRISM DLR set up a subgroup called PRISM PDA Ireland to provide practical advice, support and guidance to individuals and families supporting individuals who present with autism and anxiety-based demand avoidance. The organisation was registered as a charity in 2018 and is run entirely on a voluntary basis. There is a dearth of research examining this profile within the autistic spectrum, but findings suggest uncertain health, education, and life outcomes for children, young people and adults. Consequently, PRISM DLR commissioned this investigation with the purpose of capturing and contextualising PDA in Ireland.