Mapping the lived experiences of intersex/variations of sex characteristics in Ireland: contextualising lay and professional knowledge to enable development of appropriate law and policy

Abstract

Intersex is an umbrella term for people born with atypical variations of sex characteristics (I/VSC) estimated to be between 0.5% and 1.7% the population according to the UN. This report is novel as it uncovers the lived experiences of those with I/VSC, their partners and the health care professionals who care for them in Ireland. It will sets this analysis in the context of the legal response to I/VSC in order to determine how Ireland meets in obligations towards those with I/VSC. This report brings together an understanding of I/VSC from the perspectives of sociology, medical and legal disciplines which is unique in the study of I/VSC. It paints a comprehensive picture of the current state of I/VSC in Ireland.

Item Type:	Monograph (Project Report)
Refereed:	No
Uncontrolled Keywords:	variations of sex characteristics; disorder of sex development; atypical sex characteristics; diverse sex development; differences of sex development; body difference, lived experiences; hermeneutic phenomenology; human rights; trauma; harm; childhood trauma; stigma; shame; torture; gender based violence; medical records; privacy; discrimination; differences; policy, law reform; 5-Alpha Reductase Deficiency (ARD); Ambiguous Genitalia; Androgen Insensitivity Syndrome (AIS); Complete Androgen Insensitivity Syndrome (CAIS); Partial Androgen Insensitivity Syndrome (PAIS); Congenital Adrenal Hyperplasia (CAH), Gonadal Dysgenesis (partial & complete); Hypospadias; Jacobs/XYY Syndrome; Kallman Syndrome, Klinefelter syndrome (KS) also known as XXY/47; Mayer-Rokitansky-Küster-Hauser (MRKH), Micropenis; Mosaicism involving “sex” chromosomes; Ovo-testes; Polycystic Ovarian Syndrome; Progestin Induced Virilisation; Swyer Syndrome; Turner’s Syndrome (one X chromosome); XY-Turner’s Syndrome
Subjects:	Medical Sciences > Health Medical Sciences > Medical ethics Medical Sciences > Psychology Social Sciences > Education Social Sciences > Law Social Sciences > Social psychology Social Sciences > Sociology Social Sciences > Gender Social Sciences > Identity
DCU Faculties and Centres:	DCU Faculties and Schools > Faculty of Science and Health > School of Nursing, Psychotherapy & Community Health DCU Faculties and Schools > Faculty of Humanities and Social Science > School of Law and Government
Publisher:	Dublin City University
Copyright Information:	2022 The Authors. (CC-BY 4.0)
Funders:	Irish Research Council, Project Number: IRC Coalesce 2019/156
ID Code:	26873
Deposited On:	31 Mar 2022 13:36 by Tanya Ní Mhuirthile . Last Modified 31 Mar 2022 13:36

Item Type:

Monograph (Project Report)

Refereed:

Uncontrolled Keywords:

variations of sex characteristics; disorder of sex development; atypical sex characteristics; diverse sex development; differences of sex development; body difference, lived experiences; hermeneutic phenomenology; human rights; trauma; harm; childhood trauma; stigma; shame; torture; gender based violence; medical records; privacy; discrimination; differences; policy, law reform; 5-Alpha Reductase Deficiency (ARD); Ambiguous Genitalia; Androgen Insensitivity Syndrome (AIS); Complete Androgen Insensitivity Syndrome (CAIS); Partial Androgen Insensitivity Syndrome (PAIS); Congenital Adrenal Hyperplasia (CAH), Gonadal Dysgenesis (partial & complete); Hypospadias; Jacobs/XYY Syndrome; Kallman Syndrome, Klinefelter syndrome (KS) also known as XXY/47; Mayer-Rokitansky-Küster-Hauser (MRKH), Micropenis; Mosaicism involving “sex” chromosomes; Ovo-testes; Polycystic Ovarian Syndrome; Progestin Induced Virilisation; Swyer Syndrome; Turner’s Syndrome (one X chromosome); XY-Turner’s Syndrome

Subjects: